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News & Events
This section highlights selected international and national meetings with particular relevance to FSHD, as well as other local events in which our Wellstone Center participates. The FSHD Society maintains a calendar with additional events, including local patient meetings, at https://www.fshdsociety.org/fshd-events-calendar/
Lists of publications and talks/abstracts/posters by researchers in our Wellstone Center can be found on the Publications & Abstracts pages.
Upcoming Events:
2023: FSHD Society IRC Meeting: details TBD; Milan, Italy [link]
2023: MDA Clinical & Scientific Conference: March 19-22, 2023; Dallas, TX [link]
Past Events:
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Jul 16, 2022
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Included discussion of upcoming FSHD clinical trials and biomarker studies by Dr. Lawrence Hayward
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Jun 16, 2022
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Including talks by the Utah and Nationwide Children’s Hospital groups, as well as several posters on our Center’s projects.
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May 11, 2022
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Interactive presentation by invited speaker Dr. Lawrence Hayward discussing upcoming FSHD clinical trials
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Mar 13, 2022
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Including “Lab to Life: FSHD” session, with Scott Harper and others.
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Jun 25, 2021
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Including a Keynote talk by Russell Butterworth, “The history of FSHD in a large Utah kindred: The fruits of 80+ years of engagement”, as well as other talks by the Nationwide Children’s Hospital and UMass Chan groups, as well as several posters on our Center’s projects. Special congratulations to Alec DeSimone, winner of Best Poster Award for “A Live-Cell Drug Screening Platform for FSHD Therapeutics” (A. DeSimone, A. Lek, M. Lek). [link]
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Mar 15, 2021
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Jun 25, 2020
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Including talks by the Boston Children’s Hospital, Nationwide Children’s Hospital, and UMass Chan groups, as well as several posters on our Center’s projects
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Jun 18, 2020
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Including “Lab to Life: What's New in LGMD, FSHD & DM” session with Katelyn Daman and others.
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Apr 28, 2020
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Interactive presentation by invited speaker Dr. Lawrence Hayward.
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Jan 12, 2020
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Agenda included prestations by the UMass Wellstone researchers and clinicians, as well as the FSHD Society, Fulcrum Therapeutics, and Dr. Rabi Tawil
