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Government, Industry, Non-Profit, Academic Partners

Partnerships are the heart of our Wellstone MD CRC. Collaborators and expert consultants support the cores and projects are experts in their respective scientific, clinical and service areas.

Patient Advocacy Partners 

Daniel Paul Perez, A.B., Co-founder & Research Programs, FSHD Society, Inc., UMMS, Worcester, Massachusetts. As an FSHD patient advocate, Mr. Perez has a leadership role in the Center and in Core A specifically to implement communications strategies, help to manage the Center Website, organize the Patient-Researcher Meeting and International Workshops, and work with patients and families to provide education and support for their participation in the Core C biopsy program. The FSHD Society and the Center cost share to organize these meetings. 

Jamshid Arjomand, Ph.D., Chief Science Officer at the FSHD Society with over 15 years of pharmaceutical and biotechnology experience in chronic pain, neurodegeneration, neuromuscular disorders and human stem cell disease modeling.

Center Collaborators

Dr. Michael Brehm, M.D., Associate Professor in the department of Molecular Medicine at  UMMS.  Specializes in Xenograft modeling of the innate immunity response to FSHD disease pathology.

Anastasia Khvorova, Ph.D., Professor in the RNA Therapeutics Institute at UMass Medical School, specializing in the development of oglionucleotide therapeutics.

Jonathan Watts, Ph.D., Associate Professor in the RNA Therapeutics Institute at UMass Medical School, specializing in nucleic acids chemical biology.

New York Genome Center, Genome and methylome sequencing.

Center Consultants and Services

Dr. Steven Moore, M.D., Ph.D., Professor of Pathology, University of Iowa School of Medicine and the Iowa Wellstone. Dr. Moore and the Iowa Diagnostics Lab is responsible for FSHD genotyping blood and muscle samples for patients participating in Center research.