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Alpha-1 Resources

Alpha Net

AlphaNet, Inc. is a not-for-profit organization that provides an innovative disease management program for individuals with Alpha-1 Antitrypsin Deficiency.

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Augmentation Therapies

This is a central resource for information on access to care and reimbursement issues for Alphas who require assistance to ensure access to FDA-approved augmentation therapy products in the United States.

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Reach Program

For ZZ and other severely deficient genotypes Alphas not receiving Augmentation Therapy.

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Alpha-1 Foundation

The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide.

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Patient Publications ›

Alpha-1 news ›

Alpha-1 Foundation Patient Pamphlets/Brochures

What is Alpha-1 Antitrypsin Deficiency ›

Guide to the Recently Diagnosed Individual ›

What does it mean to be an Alpha-1 Carrier

The Liver and Alpha-1 ›

It’s All in the Family ›

Issues in End of Life Care ›


Patient Info Line

Genetic Counseling

Peer Guide Program

Support Groups

Virtual Support Groups


Alpha-1 Kids

Events Calendar