UMass Chan Medical School has launched Rare Diseases, Real Stories, a six-episode podcast series that shines a spotlight on the courage, resilience and advocacy work of families affected by rare diseases.
Each episode offers an intimate look into their lives, struggles with grief, determination to fight for answers and their profound love and hope. The stories illustrate how their collaboration with UMass Chan researchers is driving innovation and fostering new rare disease treatments.
Rare Diseases, Real Stories is intended to inform, inspire and connect the rare diseases community. The series illuminates the incredible network of scientists, clinicians, families and advocates working to drive rare diseases research forward.
The podcast is produced by the Office of Communications at UMass Chan. It is available on all major streaming platforms, including Apple Podcasts, Spotify, iHeart Radio and the UMass Chan website. Subscribe to Rare Diseases, Real Stories and join this journey of hope, resilience and determination.
Follow @UMassChan on Instagram, X, YouTube, LinkedIn, Bluesky and Facebook for episode highlights.