De-identified Data

DeIdentified DataUMass Medical School currently operates TIDE, a clinical data repository system that aggregates UMass Memorial Health Care clinical data on a regular basis.  This system is set up to load the latest data from multiple clinical systems, and users can see the events log on the clinical data portal to see the latest update.

The Clinical Data Team, Data Sciences & Technology also created MiCARD, utilizing the standards developed by Informatics for Integrating Biology and the Bedside (I2B2), an NIH-funded National Center for Biomedical Computing (NCBC) based at Partners HealthCare System in Boston.  MiCARD aggregates clinical data without the implication of personally identifiable Information (PII) to ensure patient privacy. 

TriNetX

UMMS has partnered with TriNetX, a third party software company that provides de-identified clinical data to its members via a network access.  TriNetX utilizes the existing UMMS instance of I2B2 to further enhance the users’ ability to analyze and report de-identified clinical data through proprietary software.  This enhances UMMS’ visibility to industry sponsors for the purpose of identifying potential clinical trial partners.  

Please note that TriNetX system shall produce the same query result as in MiCARD, however TriNetX provides a more advanced reporting tool and a user friendly interface.  

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