Story of boy with ultra-rare UBA5 disorder being studied at UMass Chan goes to the moon
The story of Raiden Pham, an Oregon toddler with an ultra-rare genetic disease was included on the Lunaprise Museum, a digital time capsule that went to the moon with the Odysseus spacecraft in February. Tommy and Linda Pham founded Raiden Science Foundation in 2021 to raise money to support research on a treatment at UMass Chan’s Translational Institute for Molecular Therapeutics.
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