Muscular Dystrophy - CARE Act Reauthorization

Special Congressional Briefing

Date Posted: 06/02/14

On February 25th, members of the muscular dystrophy community held a special Congressional briefing to urge reauthorization of The Muscular Dystrophy Community Assistance, Research and Education (MD-CARE ) Act (S 315/HR/594).  The briefing featured research and clinical care leaders along with patients from across the country, including Kennedy Krieger’s own Dr. Kathryn Wagner, who discussed the enormous impact of the MD-CARE Act and current needs that would be addressed by pending amendments to this landmark law.  Senator Wicker from Mississippi, a co-sponsor of the original legislation along with staff from the offices of Sen Klobuchar (Minnesota), Rep. Burgess (Texas) and Rep. Engel (New York) were in attendance.  The MD-CARE Act was initially signed into law in 2001 and is the only muscular dystrophy specific legislation in the world.

Click here to read Dr. Wagner’s speech.