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Newborn Screening

Frequently Asked Questions

Routine Screening

  • What is the purpose of the Newborn Screening Program?
  • What is the chance my baby has a disorder that can be detected by routine screening?
  • How are the tests done?
  • Who decides which disorders are included in Newborn Screening?
  • May I refuse the newborn screening tests for my baby?
  • How can I get information about the results of my baby’s newborn screening tests?
  • My baby’s doctor says that I need to bring my baby in because of newborn screening. Does that mean that my baby has a disorder?
  • What is known about the disorders that are included in Routine Screening?

Optional Screening Services

  • Research studies of new tests (Pilot studies).
  • What pilot studies are being conducted now?
  • Can any newborn participate in the pilot studies?
  • May I refuse to participate in one or more pilot studies?
  • How do I enroll? Or, how do I refuse to participate?
  • What are the general benefits and risks associated with pilot studies?
  • Where can I find out more about the pilot studies?

Additional Information for parents Who want to know more about the 2 pilot studies

  • Pilot study #1 MET
  • Pilot study #2 SCID


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This is an official Page/Publication of the University of Massachusetts Worcester Campus
New England Newborn Screening Program 305 South Street Jamaica Plain, Massachusetts 02130-3597
Questions or Comments? Email: nbs@umassmed.edu Phone: 617-983-6300
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